{"id":1184,"date":"2023-02-21T19:03:01","date_gmt":"2023-02-21T19:03:01","guid":{"rendered":"https:\/\/ercalgroup.org\/?page_id=1184"},"modified":"2023-02-21T20:05:17","modified_gmt":"2023-02-21T20:05:17","slug":"rare-diseases-in-latin-america","status":"publish","type":"page","link":"https:\/\/ercalgroup.org\/es\/rare-diseases-in-latin-america\/","title":{"rendered":"Rare diseases in latin america: a dialogue with experts event"},"content":{"rendered":"<div data-elementor-type=\"wp-page\" data-elementor-id=\"1184\" class=\"elementor elementor-1184\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6858c0a elementor-section-full_width elementor-section-height-default elementor-section-height-default\" data-id=\"6858c0a\" data-element_type=\"section\" data-e-type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-4bd34af\" data-id=\"4bd34af\" data-element_type=\"column\" data-e-type=\"column\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-563f56e elementor-widget elementor-widget-image\" data-id=\"563f56e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1918\" height=\"600\" src=\"https:\/\/ercalgroup.org\/wp-content\/uploads\/2023\/02\/Events.jpg\" class=\"attachment-full size-full wp-image-1229\" alt=\"\" srcset=\"https:\/\/ercalgroup.org\/wp-content\/uploads\/2023\/02\/Events.jpg 1918w, https:\/\/ercalgroup.org\/wp-content\/uploads\/2023\/02\/Events-300x94.jpg 300w, https:\/\/ercalgroup.org\/wp-content\/uploads\/2023\/02\/Events-1024x320.jpg 1024w, https:\/\/ercalgroup.org\/wp-content\/uploads\/2023\/02\/Events-768x240.jpg 768w, https:\/\/ercalgroup.org\/wp-content\/uploads\/2023\/02\/Events-1536x481.jpg 1536w, https:\/\/ercalgroup.org\/wp-content\/uploads\/2023\/02\/Events-18x6.jpg 18w\" sizes=\"(max-width: 1918px) 100vw, 1918px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-6085fcf elementor-widget__width-auto elementor-absolute animated-slow elementor-invisible elementor-widget elementor-widget-image\" data-id=\"6085fcf\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;,&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:300}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"454\" height=\"212\" src=\"https:\/\/ercalgroup.org\/wp-content\/uploads\/2022\/01\/Recurso-14ico.png\" class=\"attachment-large size-large wp-image-155\" alt=\"\" srcset=\"https:\/\/ercalgroup.org\/wp-content\/uploads\/2022\/01\/Recurso-14ico.png 454w, https:\/\/ercalgroup.org\/wp-content\/uploads\/2022\/01\/Recurso-14ico-300x140.png 300w\" sizes=\"(max-width: 454px) 100vw, 454px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-9896ac4 elementor-widget__width-auto elementor-absolute animated-slow elementor-invisible elementor-widget elementor-widget-image\" data-id=\"9896ac4\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_position&quot;:&quot;absolute&quot;,&quot;_animation&quot;:&quot;fadeIn&quot;,&quot;_animation_delay&quot;:300}\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"528\" height=\"419\" src=\"https:\/\/ercalgroup.org\/wp-content\/uploads\/2022\/01\/Recurso-13ico.png\" class=\"attachment-large size-large wp-image-154\" alt=\"\" srcset=\"https:\/\/ercalgroup.org\/wp-content\/uploads\/2022\/01\/Recurso-13ico.png 528w, https:\/\/ercalgroup.org\/wp-content\/uploads\/2022\/01\/Recurso-13ico-300x238.png 300w\" sizes=\"(max-width: 528px) 100vw, 528px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-ae7a217 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"ae7a217\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-0ae8219\" data-id=\"0ae8219\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1b98dc9 elementor-widget elementor-widget-heading\" data-id=\"1b98dc9\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Enfermedades raras en Am\u00e9rica Latina: Di\u00e1logo con expertos <\/h2>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-66dde05 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"66dde05\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-a9b7770\" data-id=\"a9b7770\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-94a9003 elementor-widget elementor-widget-text-editor\" data-id=\"94a9003\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h5 style=\"font-weight: 400;\"><strong>Asistentes:<\/strong><\/h5><p style=\"font-weight: 400;\"><em>Instituciones:<\/em><\/p><ul><li style=\"font-weight: 400;\">Heidi Bjornson representante de Chan Zuckerberg (<strong>CZI<\/strong>)<\/li><li style=\"font-weight: 400;\">Stephen Groft, Presidente de Rare Diseases of the Caribbean and Latin America (<strong>ERCAL<\/strong>)<\/li><li style=\"font-weight: 400;\">Richard Salvatierra Presidente de la Americas Health Foundation (<strong>AHF<\/strong>)<\/li><\/ul><p style=\"font-weight: 400;\"><em>Moderadores:<\/em><\/p><ul><li style=\"font-weight: 400;\">Felicitas Colombo Directora de Asuntos P\u00fablicos y Gubernamentales de AHF<\/li><li style=\"font-weight: 400;\">Dra. Mariana Rico, Directora M\u00e9dica de AHF<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-b2eb235\" data-id=\"b2eb235\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1e9ef55 elementor-widget elementor-widget-text-editor\" data-id=\"1e9ef55\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"font-weight: 400;\"><em>Patient Associations:<\/em><\/p><ul><li style=\"font-weight: 400;\">Luciana Escati Pe\u00f1aloza, Argentinean Federation of Rare Diseases (<strong>FADEPOF<\/strong>).<\/li><li style=\"font-weight: 400;\">Antoine Daherm, Federa\u00e7\u00e3o Brasileira das Associa\u00e7\u00f5es de Doen\u00e7as Raras (<strong>FEBRARARAS<\/strong>).<\/li><li style=\"font-weight: 400;\">Alejandro Andrade, Chilean Federation of Rare Diseases (<strong>FECHER<\/strong>).<\/li><li style=\"font-weight: 400;\">Diego Gil Cardoso, Colombian Federation of Rare Diseases (<strong>FECOER<\/strong>).<\/li><li style=\"font-weight: 400;\">Jes\u00fas Navarro, Mexican Organization for Rare Diseases (<strong>OMER<\/strong>).<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-aa01c54 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"aa01c54\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-78bc228\" data-id=\"78bc228\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-977761e elementor-widget elementor-widget-heading\" data-id=\"977761e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Resumen del evento - Enfermedades Raras en Am\u00e9rica Latina: Un di\u00e1logo con expertos<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0487372 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"0487372\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-7354987\" data-id=\"7354987\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-d7d1f50 elementor-widget elementor-widget-text-editor\" data-id=\"d7d1f50\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"font-weight: 400;\">Existen m\u00e1s de siete mil Enfermedades Raras en el mundo y la mayor\u00eda de ellas tienen una causa gen\u00e9tica. Seg\u00fan Orpha.net, aproximadamente entre el 4% y el 8% de la poblaci\u00f3n mundial vive con un diagn\u00f3stico de enfermedad rara, lo que se traduce en 300 millones de personas. Esto representa un grupo importante de personas que requieren atenci\u00f3n especializada en la prestaci\u00f3n de servicios sanitarios. En las \u00faltimas d\u00e9cadas, se ha prestado mayor atenci\u00f3n a los esfuerzos por estimular la investigaci\u00f3n, el desarrollo y el acceso a los medicamentos para las Enfermedades Raras. Aunque se han producido avances en las pol\u00edticas p\u00fablicas y en los marcos regulatorios, todav\u00eda son necesarias varias reformas.<\/p><p style=\"font-weight: 400;\">Actualmente, los datos sobre Enfermedades Raras en Am\u00e9rica Latina son escasos, la poblaci\u00f3n de Am\u00e9rica Latina y el Caribe seg\u00fan el Banco Mundial es de 652.276.325 (650 millones de personas). Con base en estos datos, se estima que entre 26 y 52 millones de personas viven con una Enfermedad Rara. Aunque se han observado avances, todav\u00eda existen retos de regulaci\u00f3n, infraestructura, registro y pol\u00edticas p\u00fablicas, entre otros. El objetivo de la primera mesa redonda fue 1) analizar el panorama actual en Am\u00e9rica Latina, 2) evaluar las barreras y fortalezas en la regi\u00f3n, y 3) proponer recomendaciones para superar estos desaf\u00edos.<\/p><p style=\"font-weight: 400;\">Es importante identificar las definiciones de ER. Seg\u00fan la OMS, las Enfermedades Raras son aquellas que se presentan en menos de 5 personas por cada 10 mil habitantes. Sin embargo, esta definici\u00f3n var\u00eda de un pa\u00eds a otro. En la regi\u00f3n latinoamericana, existe una amplia gama de clasificaciones. Por ejemplo, en Brasil, una enfermedad se considera rara cuando afecta a 65 o menos habitantes por cada 100.000. En Colombia, una enfermedad se considera rara cuando afecta a 1 de cada 5.000 individuos. Otros pa\u00edses como Argentina, Chile, M\u00e9xico, Panam\u00e1 y Uruguay consideran que una enfermedad es rara cuando afecta a 1 de cada 2.000 individuos.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-892efb1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"892efb1\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-e245b3d\" data-id=\"e245b3d\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ecfa4f0 elementor-widget elementor-widget-text-editor\" data-id=\"ecfa4f0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h4 style=\"font-weight: 400;\"><strong>Mesa R<\/strong><strong>edonda 1<\/strong><\/h4><p style=\"font-weight: 400;\"><em>Panelistas<\/em><\/p><ul><li style=\"font-weight: 400;\">Dr. Marisa Aizenberg (Argentina) \u2013 Academic Director of the Health Observatory at the U.B.A. Law School.<\/li><li style=\"font-weight: 400;\">Dr. Gustavo Mendes (Brazil) \u2013 General Director of Medicines and Biological Products at the National Health Surveillance Agency (ANVISA).<\/li><li style=\"font-weight: 400;\">Dr. Gabriela Repetto (Chile) \u2013 Director of the Rare Diseases Program at the Faculty of Medicine within Universidad del Desarrollo, Santiago de Chile.<\/li><li style=\"font-weight: 400;\">Dr. Germ\u00e1n Escobar Morales (Colombia) \u2013 Vice Minister of Health and Social Protection.<\/li><li><span style=\"font-weight: 400;\">Dr. Santiago March (Mexico) \u2013 Coordinator of Strategic Projects at FUNSALUD.<\/span><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-76c2419\" data-id=\"76c2419\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e261e56 elementor-widget elementor-widget-text-editor\" data-id=\"e261e56\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h4 style=\"font-weight: 400;\"><strong>Mesa Redonda 2<\/strong><\/h4><p style=\"font-weight: 400;\">Puntos clave de la Resoluci\u00f3n de la ONU sobre Enfermedades Raras, publicada el 16 de diciembre de 2021, para analizar el alcance de su adopci\u00f3n en la regi\u00f3n latinoamericana:<\/p><ol><li style=\"font-weight: 400;\">La inclusi\u00f3n y participaci\u00f3n en la sociedad de las personas que viven con una Enfermedad Rara y sus familias.<\/li><li style=\"font-weight: 400;\">La garant\u00eda del acceso universal y equitativo a los servicios de salud de calidad, sin que se produzcan dificultades econ\u00f3micas.<\/li><li style=\"font-weight: 400;\">La promoci\u00f3n de estrategias y acciones nacionales.<\/li><li style=\"font-weight: 400;\">La integraci\u00f3n de las Enfermedades Raras en las agencias, programas y prioridades de la ONU.<\/li><li style=\"font-weight: 400;\">La emisi\u00f3n de informes peri\u00f3dicos de la ONU para supervisar los progresos en la aplicaci\u00f3n de la resoluci\u00f3n.<\/li><\/ol><p style=\"font-weight: 400;\"><em>Panelistas<\/em><\/p><ul><li>Natalia Messina (Argentina) \u2013 Director of Specialty and High-Price Medicines at the National Ministry of Health.<\/li><li>Melina Maia (Brazil) \u2013 Secretary of the Permanent Mission of Brazil to the United Nations.<\/li><li>Manuel Espinoza (Chile) \u2013 Head of the Health Technology Assessment Unit of the Clinical Research Center of the Catholic University and Honorary Visiting Fellow of the Center for Health Economics at the University of York.<\/li><li>Nubia Bautista (Colombia) \u2013 Deputy Director of Non-Communicable Diseases of the Ministry of Health and Social Protection.<\/li><li>Tanya Palacios (Mexico) \u2013 Director of Genes Latinoam\u00e9rica AC and belonging to the Judicial Power of the Federation in Mexico.<\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-4cdeff1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"4cdeff1\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-a806565\" data-id=\"a806565\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-c4bc5af elementor-widget elementor-widget-heading\" data-id=\"c4bc5af\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Grabaci\u00f3n del evento<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b1cfb48 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b1cfb48\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-16 elementor-top-column elementor-element elementor-element-ca32a23\" data-id=\"ca32a23\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-967f488\" data-id=\"967f488\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-945f3c4 elementor-widget elementor-widget-video\" data-id=\"945f3c4\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;youtube_url&quot;:&quot;https:\\\/\\\/youtu.be\\\/YRVHSpXyEOg&quot;,&quot;video_type&quot;:&quot;youtube&quot;,&quot;controls&quot;:&quot;yes&quot;}\" data-widget_type=\"video.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-wrapper elementor-open-inline\">\n\t\t\t<div class=\"elementor-video\"><\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-16 elementor-top-column elementor-element elementor-element-f2d24ac\" data-id=\"f2d24ac\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-a7aaed7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"a7aaed7\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-f4a478e\" data-id=\"f4a478e\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-04d566b elementor-widget elementor-widget-text-editor\" data-id=\"04d566b\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"font-weight: 400;\"><strong>English<\/strong>: <a href=\"https:\/\/www.youtube.com\/channel\/UCUprLZYlWjgAB4VvznAg9QA\/videos\" target=\"_blank\" rel=\"noopener\">https:\/\/www.youtube.com\/channel\/UCUprLZYlWjgAB4VvznAg9QA\/videos<\/a><\/p><p style=\"font-weight: 400;\"><strong>Spanish<\/strong>: <a href=\"https:\/\/www.youtube.com\/channel\/UCyH_1r5FyJG7b-BWMRH5-4w\/videos\" target=\"_blank\" rel=\"noopener\">https:\/\/www.youtube.com\/channel\/UCyH_1r5FyJG7b-BWMRH5-4w\/videos<\/a><\/p><p style=\"font-weight: 400;\"><strong>Portuguese<\/strong>: <a href=\"https:\/\/www.youtube.com\/channel\/UCMQm_x-cPJ2OAjU0kTa2cEQ\/videos\" data-wplink-edit=\"true\">https:\/\/www.youtube.com\/channel\/UCMQm_x-cPJ2OAjU0kTa2cEQ\/videos<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-21dfcd2 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"21dfcd2\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-76d3231\" data-id=\"76d3231\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1deb7e2 elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"1deb7e2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>","protected":false},"excerpt":{"rendered":"<p>Rare Diseases in Latin America: A Dialogue with Experts Event Attendees: Institutions: Heidi Bjornson representative of the Chan Zuckerberg Initiative (CZI) Stephen Groft, President of Rare Diseases of the Caribbean and Latin America (ERCAL) Richard Salvatierra President of the Americas Health Foundation (AHF) Moderators: Felicitas Colombo Director of Public and Government Affairs of AHF Dr. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-4)","background-image":"","background-repeat":"repeat","background-position":"center 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